Hospital

  • The Centre to Advance Palliative Care (CAPC) (US) has a project: Improving palliative care in the ICU and Improving palliative care in Emergency Medicine to increase access to palliative care services for patients and their families that move these two services.
  • End-of-Life Essentials has free learning modules for health professionals that work in the acute sector. It is based on the Australian Commission on Safety and Quality in Health Care’s National Consensus Statement: Essential elements for safe and high-quality end-of-life care.
  • The Australian Commission on Safety and Quality in Health Care has resources to support End of -life care in the hospital. This includes an auditing toolkit, resources for end-of-life care and information for consumers.
  • Rawlings D, Devery K, Tieman J, Tait P, Chakraborty A. Rapid review of the literature on end-of life care. Sydney: ACSQHC; 2021. This work informs the update of the National Consensus Statement: essential elements for safe and high-quality end-of-life care.
  • The Australian Commission on Safety and Quality in Health Care Factsheet: End-of-life care - last days of life focusses on specific aspects of caring in the last days of life. This includes identification of the dying person, performing clinical observations, anticipating and managing symptoms.
  • The Australian Commission on Safety and Quality in Health Care Factsheet: End-of-life care - clinical basics. This factsheet provides a table of possible symptoms at end of life and management strategies that are the foundation of clinical end of life care.
  • The Australian Commission on Safety and Quality in Health Care Factsheet: End-of-life care -planning provides information around individualised care planning through shared decision making and the identification of a care coordinator.

Oncology


Paediatrics

  • The Royal Children’s Hospital, Melbourne has a Palliative Care section on their website. This section provides information, advice and support to ensure best possible palliative care.
  • From Palliative Care Australia a website - Paediatric Palliative Care provides practical information about paediatric palliative care. There is a carer section and a health professional section.
  • The Quality of Care Collaborative Australia (QuoCCA) project delivers paediatric palliative care education to health professionals. They also provide resources for paediatric palliative care services and offer patient carer information.
  • The West Midlands Children and Young People’s Paediatric Palliative Care Network (UK): provides a toolkit to support families by equipping staff with resources that facilitate best practice, timely care.
  • WA Cancer and Palliative Care Network: Paediatric and adolescent palliative care model of care (2009) (394kb pdf) highlights the differences between palliative care for adults, children and adolescents. They address the current gaps in service provision in their Model of Care.
  • The International Children’s Palliative Care Network (ICPCN) has published The ICPCN guide to children’s hospice and palliative care partnerships (3.65MB pdf) to encourage links between people working in this field around the world.

Adolescents

Neonates

Primary care / Community

Rural and remote

  • The Royal Australian College of General Practitioners (RACGP) aged care clinical guide (Silver Book) - Part B Older people in rural and remote communities assists GP’s working in rural and remote areas to understand the barriers and has a checklist for the newly arrives GP.
  • CRANAplus is the peak professional body for the remote and isolated health workforce of Australia. They have a Position Paper: Palliative Care (Endorsed by PCNA).
  • The Australian General Practice Network (AGPN) developed a Rural Palliative Care Program Resource toolkit which is available within the CareSearch Grey literature database.
  • From the Palliative Care Bridge website. Listen to Dr Sarah Wenham talk about rural palliative care.

Last updated 22 March 2023