Planning and Coordinating Care Resources / Planning and Coordinating Care / Nurses / Health Professionals

Resources that can help nurses with palliative care planning

Use Talking End of Life (TEL) to better understand how to talk with people with intellectual disability about end of life.
Use the resources and training offered by The Advance Project for advance care planning in general practice and primary care.
For practice guidance, read Anticipatory prescribing from Scottish Palliative Care Guidelines.
For practice tips on Anticipatory medicines go to the Marie Curie website.
Read the article from Canadian Virtual Hospice about Remaining at home: Things to consider (for nurses, patients, families, and carers).
Share with patients, family and carers the information on the Marie Curie website: Just in case medicines.

Advance Care Planning Australia host resources to help people record an advance care plan.
My Health Record stores health information that authorised healthcare providers can use to view and add health information.
CarerHelp hosts useful resources for carers to record and share important information:

Palliative care protocols for ambulance services e.g. SA and NSW. Where such arrangements do not exist, a written plan of care for the ambulance can relieve paramedics of the obligation to perform CPR on a palliative care patient who is actively dying, or to transport them to an emergency department
From the Palliative Care Bridge website video series, listen to Professor Rod MacLeod discuss the challenges in finding the right time to refer to palliative care.

Do the PCC4U Module 4 Activity 3: Goals of Care to learn about the process of establishing goals of care for people in your care.
Read the Digital Health Australia guidelines on using My Health Record for advance care planning and goals of care documents.
Setting and implementing patient-set goals in palliative care (9.97MB pdf) provides guidance on goal setting in the context of palliative care.
Implementing the Comprehensive Care Standard Identifying goals of care from the Australian Commission on Safety and Quality in Health Care provides practical advice for clinicians and health service organisations about goal setting.

Patient-centred care: Improving quality and safety through partnerships with patients and consumers from the Australian Commission on Safety and Quality in Health Care provides background information, resources, and examples of how to take a more person-centred approach to healthcare delivery.
In this video, Dr Paresh Dawda and palliative care nurse practitioner Nikki Johnston discuss Challenges of delivering a person centred palliative care model.
To know more about key barriers and promising approaches for improving access to and experience of palliative care for 9 population groups within Australia read Exploratory Analysis of Barriers to Palliative Care reports.
To better understand how aged care services can meet the needs of people from diverse backgrounds, read the Aged Care Diversity Framework.

Explore the information and resources from the Cognitive Decline Partnership Centre to help you support people living with dementia to be involved in decisions that affect their care.
Visit Finding your way, a shared decision-making model created to help Aboriginal people.
The Disability Services supported decision making: A quick reference guide for disability support workers (770kb pdf) can help you support people with a disability who are making decisions.

CareSearch Patient and Carers section has a section on How to Care.
CareSearch Diversity section hosts culturally appropriate resources in palliative care.
CarerHelp host online education and resources about what to expect and what you can do as a life-limiting illness progresses.
Marie Curie website provides practice guidance on Supporting family and friends in palliative care.

The ACSQHC Delivering and Supporting Comprehensive End-of-Life Care: a user guide (1.8MB pdf) provides practical strategies that health service organisations and clinicians can use to provide safe and high-quality end-of-life care.
On the palliAGED website Care Coordination provides a concise synopsis with a companion page with practical information.
The Continuity and care co-ordination in palliative and end of life care: Evidence for what works (1.3MB pdf) from Healthcare Improvement Scotland summarises the available evidence on the approaches to care coordination in palliative care and end-of-life care.
Read the article from Canadian Virtual Hospice about Remaining at home: Things to consider (for nurses, patients, families, and carers).

Page created 15 August 2022

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